5 ways we rob people with dementia of their dignity


Dementia doesn't rob someone of their dignity ~ Teepa Snow quote 2

Sadly, there are countless ways we rob people who live with dementia of their dignity.

Here are five I’ve learned based on my personal experience:

1 ) Calling them by diminutive pet names instead of their given names

2 ) Treating them like they are little more than pieces of furniture

3 ) Forcing them to sit with nothing to do for hours on end

4 ) Neglecting their overall care and well being

5 ) Inapropriately medicating them with antipsychotic drugs

Everyone deserves to be treated with dignity regardless of race, colour, creed, gender, or disease.

These tips and thoughts are based on my personal experience, as well as my knowledge and work as a former certified PAC trainer; the quote is Teepa Snow’s. Do you believe things should change? Here’s the other side of the coin: 10 practical ways care partners can help preserve the dignity of people who live with dementia.

10 practical ways care partners can help preserve the dignity of people who live with dementia

7 ways to preserve dignity

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  1. Karen Tollan on

    I have tried to get my husband Bob in the shower for at least 2 months. He has a seat bench in the tub and a heavy grab bar to hold onto. When I ask him if he will be having a shower today, his usual answer is tomorrow, but that does not happen. Does anyone have any suggestions for me please? Thank you.

  2. My mom lives with me now since my dads passing in January this year. I was taking care of them both in their home for the last 2 years. I have made it a rule not to demean my mother when changing her diaper, we are not allowed to call it a diaper we refer to it as her underwear, she uses a bib but we refer to that as her apron. She is bed fast now and her speech is very limited, but her smile is still hers, her blue eyes still see me and I talk to her as I did when she could respond. When I bathe her or run lotion on her I channel my love for her through my hands and with a smile. I have had no training and learned what I know through reading and watching videos like Teepa Snow’s, I’m thankful someone puts this kind of information out there for those of us who take care of someone with Alzheimer’s dementia. Thank you.

    • “…I channel my love for her through my hands and with a smile.” Thanks Jana for sharing these beautiful and intimate details of the care you give to your mother. Clearly you are an angel, and you will reap many blessings as I’m sure you already are from what you are doing. Thank YOU.

  3. I am caring for my brother. He has early onset dementia at age 59. I try to engage him in activities and doing things with my family, but he refuses. What should I do?

      • He talks about spending time with his friends at a pub near his house, and how he misses them. but once I was able to talk with these people I realized that he is describing events that occurred 30 years ago. When the weather is good, he will go for long walks, 10 -12 miles. It scares me, because he is gone so long. But I can’t force him to stay home. He hates being here, but cannot live alone. He lived in another state for 35 years and we were called in when he ended up at the va hospital. I offer to take him anywhere he wants but he won’t go.

  4. I took care of a friends Mother in their home(her husband took care of her with help of a Aide during the day & I took care of her overnight) I often called her “Sweet-pea” her given name was Gloria but she went by Lorry, I was in no way demeaning her by calling her Sweet-Pea, it was a loving endearment & she laughed & lit up when I called her that. After a while her husband called her that too. She had Dementia for over 10 years but she knew her name & she knew that I loved her, we became very close in a very short period of time. I don’t see anything wrong with what I did or her husband. I can see if someone called a person something bad or if they didn’t even know their name because that would be demeaning, cruel & confusing for them.

    • Thanks for your comment Donna, if Gloria liked to be called Sweat Pea, if that was her preference, and it didn’t demean her in any way, then that’s fine. There are exceptions to every rule, and everything depends on what is right for the individual. However, many people use terms of endearment in ways that infantilized, demean and patronize others. They often do so unintentionally. I hate to be called “dear,” or any other such form of endearment except by my mother. I think I deserve the right to be called what I wish to be called now and until the day I die. If you clicked on the link (http://myalzheimersstory.com/2016/01/21/50-names-not-to-call-alzheimers-me/), I think you would’ve seen that there is research that shows that many elderly people prefer that others not use terms of endearment. If it worked for you and Gloria and her husband, great. But it doesn’t work for many others. thanks again for your comment 🙂

  5. I agree with your comments, but if you have a great Activity Director this should not happened. Where I live the government checks on places with frequency to make sure those 5 points do not happen.

  6. I don’t know where you worked but my experience could not be further from what you have in your 5 points. The nursing home my mum was in is obviously streets ahead of its time

  7. Thank you for great insight. We work alongside some IF and ALF, and see great boredom, and sometimes neglect, in these facilities, We can confirm points 2,3,4, and 5. As for medication, one client had a husband placed in a facility, and in the third week his aggression was medicated excessively. Dignity, and humanity, is degraded with all these points.

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