We often use pejorative words to describe that which we don’t like in others. We label behaviours that challenge us, don’t fit with our agenda, interfere with our routines or are inconvenient to us in some way or another as “bad,” particularly if those behaving in the way we don’t approve live with dementia in institutional environments.
When they “resist care,” “wander,” or “complain” their “bad” behaviours are recorded and tracked in charts by nurses and care staff like so many black marks, which, if and when there are enough of them, may lead to the offender being “punished” by, for example, being physically restrained and/or chemically restrained, which in turn may lead her or him to incur more infractions such as “trying to escape,” or “refusing medication.”
I believe we have to stop this cycle by reframing how we think about the behaviour of people who live with dementia. I’ve already suggested lots of alternatives for wanderer and wandering.
Here are some potential replacements for “refused [antipsychotic]medication,” which I hope medical professionals and long-term care facility staff will take time to think about:
- Respectfully declined
- Wished to remain himself
- Exercised her right to choose
- Preferred to keep her wits about her
- Wanted to be awake instead of sleeping
- Wished to avoid unpleasant side effects
- Preferred to be alert rather than catatonic
- Wanted to engage life and live longer & better
- Refused to put herself at increased risk of falls
- Wanted to have control instead of to be controlled
In case you think I’m being over the top and/or silly about this, please take a moment to reflect on what you would do if someone tried to make you take drugs you didn’t want to take. If you are like 94% of the 1,300+ people who have answered my short survey on behaviour, you would decline to take them. #justsaying
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