Family, Poetry, Real life

6 priceless gifts you could give people living with dementia (and everyone else for that matter!)

These gifts are inexpensive (they don’t cost dollars and cents, so everyone can afford them), and yet priceless (because of the fact they can’t be bought, and must be given from the heart). Even better, they can be gifted all year round!

Please consider giving one, several or all of these gifts this year (and always) to people who live with dementia in your family, your community and around the world.

Respect

You could treat people who live with dementia like the human beings they still are no matter what “stage” of the condition they are living with. You could treat them like adults, not children. You could respect their wishes, wants and desires. You could believe their lives still have value, and you could demonstrate that belief in the way you interact with them.

Love

You may have been told that people who live with dementia become empty shells. But that’s not true. They are people with rights and needs just like the rest of us, and they need to be loved just like the rest of us do. Share your love.

Time

You could give them the most precious gift of all: the gift of time. Carve out a space in your busy life and go to visit someone living alone, or someone who rarely gets visitors even if they are living in community. Once you get there, sit and stay awhile. You don’t have to do anything – just being with someone is often enough.

Understanding

People who live with Alzheimer’s disease and other dementias are widely misunderstood, stigmatized and marginalized. If each and every one of us took the time to educate ourselves and to really understand what’s going one with people who live with dementia, and what causes them to behave the way they do, we would all be a lot better off. If you haven’t already begun learning, start educating yourself now.

Compassion

Imagine what it might be like to be experiencing brain changes in which your memory and your ability to understand the world are shifting in ways that make it hard for you to navigate reality. Imagine what it might be like to experience stigma and isolation, to have other people take control of your life. Imagine what it might be like to walk in their shoes, and then give the people you interact with who are living with dementia your compassion and understanding.

Advocacy

People who live with dementia are often treated like objects, like pieces of furniture, as if they are less than human. Many are unable to speak up for themselves. We need to be their voice. We need to ensure that they are treated with dignity, and that they get the care they have a right to. When you see people who live with dementia being neglected, abused or treated in ways they shouldn’t be, SAY SOMETHING! And then keep advocating until things change.

These are gifts that money can’t buy, but that we all have the capacity to give.

Please give generously.

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Joy, Life & Living, Love, Memories, Music, Videos

everyone should be helped to let the sun shine in

Mom was taken from her home on November 16, 2012, (the day our best wasn’t good enough), and “placed” in a long-term care facility (LTCF).

Like every human being (whether they live with dementia or not), Mom deserved to be treated with dignity and respect and to be provided  ongoing opportunities to engage life in whatever way she could until the day she died. She loved to be active, involved, singing, dancing, and interacting with others. Her  lively spirit and sense of humour are captured in the videos below, taken on the morning of November 16, 2012, the day she went to the nursing home.

Sadly, Mom deteriorated more in the first eight weeks she was in LTC than she had in the previous two years. She was given increasing amounts of antipsychotic drugs (a form of abuse), and her care was neglected in many ways. The way she was treated is unacceptable. So was the treatment of Ran Shirdan’s grandmother, Lori Derkevor’s father, Sue Turner’s parents, and countless others worldwide.

We need to change the way we care for the elderly, particularly people who live with dementia, and particularly those in LTCFs. Most deserve much much better than what they’re getting. They should be provided the kind of love and support Caroline and I gave Mom when we lived with her in her own home.

Everyone should be pampered:

Everyone should be helped to let the sun shine in:

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Image copyright: jorisvo / 123RF Stock Photo