Family, Poetry, Real life

6 priceless gifts you could give people living with dementia (and everyone else for that matter!)

These gifts are inexpensive (they don’t cost dollars and cents, so everyone can afford them), and yet priceless (because of the fact they can’t be bought, and must be given from the heart). Even better, they can be gifted all year round!

Please consider giving one, several or all of these gifts this year (and always) to people who live with dementia in your family, your community and around the world.

Respect

You could treat people who live with dementia like the human beings they still are no matter what “stage” of the condition they are living with. You could treat them like adults, not children. You could respect their wishes, wants and desires. You could believe their lives still have value, and you could demonstrate that belief in the way you interact with them.

Love

You may have been told that people who live with dementia become empty shells. But that’s not true. They are people with rights and needs just like the rest of us, and they need to be loved just like the rest of us do. Share your love.

Time

You could give them the most precious gift of all: the gift of time. Carve out a space in your busy life and go to visit someone living alone, or someone who rarely gets visitors even if they are living in community. Once you get there, sit and stay awhile. You don’t have to do anything – just being with someone is often enough.

Understanding

People who live with Alzheimer’s disease and other dementias are widely misunderstood, stigmatized and marginalized. If each and every one of us took the time to educate ourselves and to really understand what’s going one with people who live with dementia, and what causes them to behave the way they do, we would all be a lot better off. If you haven’t already begun learning, start educating yourself now.

Compassion

Imagine what it might be like to be experiencing brain changes in which your memory and your ability to understand the world are shifting in ways that make it hard for you to navigate reality. Imagine what it might be like to experience stigma and isolation, to have other people take control of your life. Imagine what it might be like to walk in their shoes, and then give the people you interact with who are living with dementia your compassion and understanding.

Advocacy

People who live with dementia are often treated like objects, like pieces of furniture, as if they are less than human. Many are unable to speak up for themselves. We need to be their voice. We need to ensure that they are treated with dignity, and that they get the care they have a right to. When you see people who live with dementia being neglected, abused or treated in ways they shouldn’t be, SAY SOMETHING! And then keep advocating until things change.

These are gifts that money can’t buy, but that we all have the capacity to give.

Please give generously.

13+ needs we share with people who live with dementia

alzheimer annie invites you in

30 powerful things you could say to reduce anxiety and anger, and connect with people who live with alzheimer disease

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Advocacy, Inspiration, Life & Living, Videos

how not to kill dementia dancers

Sir Ken Robinson’s wonderful 2006 TED talk asks a simple question: “Do schools kill creativity?“

When I re-watched it for the umpteenth time, I was struck by one particular story he told about a little girl and how a parallel might be drawn between the way we label behaviours we find challenging in people who live with dementia, and the way we label behaviour we find challenging in others, particularly children.

Instead of physically and chemically restraining people like my mom, who wanted to keep going despite living with Alzheimer disease, we need to find ways to help them “dance,” whatever dancing means to them. If and when we don’t, we are killing them just as surely as we are killing the creativity of our children in educational systems that put them in boxes, make them sit all day, stifle their curiosity and force them to obey senseless rules.

Systems should be made to fit people. Not the other way around. Here’s the powerful and inspiring three-minute story of the little girl (the full talk is below the short clip):

 

https://myalzheimersstory.com/2016/06/22/10-smart-dance-tips-for-dementia-care-partners/

https://myalzheimersstory.com/2015/11/23/when-mind-and-body-fail-look-for-the-dancer-inside-2/

https://myalzheimersstory.com/2016/03/05/once-a-dancer/

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Image copyright: danr13 / 123RF Stock Photo

Family, Inspiration, Life & Living, Love, Real life

out of the mouths of babes come dementia truths

Thanks to Leah Bisiani of Uplifting Dementia for sharing an encouraging story from Australia about a program there called Kids4Dementia. Her post on Linked in brought me to a story that made my heart sing. It said things such as:

“Attitudes and habits are notoriously difficult to change. Rather than waiting for [attitudes about dementia] to become entrenched, we decided to try to create them proactively among today’s children.”

The article included this touching video, which includes the young girl and the quote above at the very end:

It went went on to describe stuff we should be trying to achieve with adults as well as children to lessen the stigma around Alzheimer disease and other related dementias:

Kids4Dementia is a multimedia dementia education program for primary schoolchildren.

Through an engaging animated story, real-life videos and fun activities, 10 and 12-year-olds learn that a person with dementia is still a person, and not someone to fear, laugh at or ignore.

Students learn how it feels to have dementia or live with someone with dementia, discover activities they can do with a person with dementia and how visits to care homes can be fun. Students also learn how to reduce their risk of developing dementia in later life.

Kids4Dementia [was piloted in] three schools in Australia. The teachers loved it, the students loved it, and importantly it worked. Kids4Dementia statistically improved students’ attitudes about dementia.”

Yay Kids4Dementia! Here’s hoping you go worldwide.

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