Tag: Greg Steven Elofson

Advocacy, Real life, Toward better care, You said it!

greg steven elofson says: perspective is important

My Alzheimer's Story

When I posted “the shocking truth behind this tragic video” on LinkedIn, the first comment it generated reframed the whole situation in less than five full lines, and in a way that made infinite sense to me. I think it will make huge sense to you too.

Greg Steven Elofson, Co-Founder at AlzCare Labs, Inc. said: 

“Perspective is so important. A more accurate story lead-in would be: “These two people have been locked up against their consent for prolonged periods of time, rarely seeing the light of day, likely left with unmet needs for privacy, palatable food, and ordinary companionship. Predictably, they have done what we see prison inmates do with regularity–fight. Except these unfortunate people have committed no crimes.”

You said it Greg!
And I would add: They’re jailed because they live with dementia, a condition we stigmatize and haven’t yet (for the most part) learned to treat humanely.
~~~~~~~~~~~~~~~~~

“You said it!” is a place to discover informed comments, inspiring thoughts, short stories, good ideas, provocative opinions, quotable quotes and noteworthy snippets from across my worldwide network. 

#mc_embed_signup{background:#fff; clear:left; font:14px Helvetica,Arial,sans-serif; }
/* Add your own MailChimp form style overrides in your site stylesheet or in this style block.
We recommend moving this block and the preceding CSS link to the HEAD of your HTML file. */

Subscribe to MAS now & get 5 free PDFs & a page of welcome links:

Email Address

Take my short survey on behaviour here.

Advocacy, Real life, Toward better care, You said it!

sue clarke says: they locked up my mom

My Alzheimer's Story

I posted “hidden restraints: hidden abuse” on Facebook with this lead in: “Physical restraints aren’t always as obvious as safety belts and prison bars. I still get upset when I watch these videos; I just feel this is so wrong. On the other hand, I’m grateful I was there to liberate my mom each day, even if it was only for a few hours.”

The post was shared dozens of times and generated many comments, but this one from Sue Clarke, which I have reproduced here exactly as she wrote it, touched my heart; she said:

“My mom. Had got. Alzheimers. And demture. And the car Home. Would lock her in her room. When she. Started. To shout and lash out. We been few times. Me and my auntie. Dad. Used to get up set. We had to find a. Carerer. To unlock the. Door with. A key It’s so sad for the family. And god knows what these poor. Lady. Family feel. I’m so glad. Mom and dad. Have. Passed away. Together. Gone to a better place. Xxx”

Sue Clarke’s comment felt to me like a raw piece of poetry, just like being the care partner to someone living with Alzheimer disease can sometimes be like an experiential life poem that is at once beautiful and tragic.

“You said it!” is a place to discover informed comments, inspiring thoughts, short stories, good ideas, provocative opinions, quotable quotes and noteworthy snippets from across my worldwide network. 

~~~~~~~~~~~~~~~~~

#mc_embed_signup{background:#fff; clear:left; font:14px Helvetica,Arial,sans-serif; }
/* Add your own MailChimp form style overrides in your site stylesheet or in this style block.
We recommend moving this block and the preceding CSS link to the HEAD of your HTML file. */

Subscribe to MAS now & get 5 free PDFs & a page of welcome links:

Email Address

Take my short survey on behaviour here.