Advocacy, Family, Love, Poetry

the old man and the little boy

This seemingly anonymous piece, which I stumbled upon quite by accident, brought me to tears.

It’s a shame how we treat the most vulnerable in our world. On the other hand, each and every one of us can make a difference and create positive change through what we do, how we behave, and what we say.

Speak out. Take action. Create change.

the old man and the little boy

anonymous

“sometimes i drop my spoon,” the little boy said

“i do that too,” the old man replied.

“i wet my pants,” the little boy whispered.

“so do i,” laughed the old man.

“sometimes i cry,” the little boy said. his voice cracking a bit.

the old man nodded. “me too.”

“worst of all,” the boy said, looking up at the old man, “grown-ups don’t pay attention to me.”

he felt the warmth of a wrinkled old hand on his own.

“i know what you mean,” said the old man.

Note: I tweaked the piece I found with the above result. if you know the name of the author of the original piece, please contact me so I can give them proper credit.

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Image copyright: imtmphoto / 123RF Stock Photo

Family, Life & Living, Love, Poetry, Spirituality

an alzheimer parent’s poem

I always feel sad when other care partners feel bad when their parent or parents who live with dementia don’t recognize them anymore. It’s a double tragedy. The adult child feels a tremendous sense of loss and grief, and those feelings cannot help but be felt by their parent who lives with dementia because the disease, which involves losses of many kinds, also increases emotional sensitivity. That is, when we feel sad, they tend to feel sad. When we feel angry, they tend to feel angry too.

I believe the ones we love and who love us always recognize us, if not on the surface, then surely at the core. This poem is about that.  I hope it may bring comfort, solace and a change of heart to those who feel despair in these kinds of situations. These 20 questions may also help.

an alzheimer parent’s poem

Dedicated to the hundreds of thousands of children who feel loss and despair when a parent who lives with dementia doesn’t recognize them.

Listen here (read below):

an alzheimer parent’s poem

©2017 punkie

i may not know your name my child
but I love you just the same
disease can make my brain misfire
my mind play silly games

sure that has no effect my child
on the fact that you are mine
you have been for a long long while
you will be for all time

i feel our kinship at my core
you are my flesh and blood
our hearts are one forevermore
come sun, or rain, or flood

i will never let you go
you are safe, don’t flee
no past, no future though
are in this place with me

your name may be forgotten
the one that i bestowed
still your eternal flame begotten
burns brightly in my soul

despair is not your destiny
our beings are intertwined
look beyond the things you see
my love there you will find

©2017 Susan Macaulay. I invite you to share my poetry widely, but please do not reblog or copy and paste my poems into other social media without my permission. Thank you.

https://myalzheimersstory.com/2015/01/21/it-doesnt-matter-that-mom-doesnt-know-me-anymore/

https://myalzheimersstory.com/2015/04/09/20-great-questions-to-ask-when-a-loved-one-with-dementia-doesnt-recognize-you-anymore/

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Image copyright: ximagination / 123RF Stock Photo

Death & Dying, Family, Life & Living, Memories, Poetry

some things and some people cannot be denied even when they’re dead

580808 Dad & Tude treated

I’m writing these words to acknowledge this date and it’s strange to me that it should have been so much easier to mark my father’s death than his birth.

Still, his role in my story is undeniable and so I cannot deny him.

in a quandary

a poem by punkie to mark her father’s birthday

who we/a/re you
tall dark stranger
who came and thus
engendered me?

i played hide
and seek behind the
uncertain safety
of my mother’s skirts

but it didn’t stop you
from tearing apart in time
what had been promised in
sickness and in health

i struggled to climb out
of vortexes that
still suck me in
and make tornadoes

look like children’s
tops spinning in the sun
on a summer afternoon
but they are not

and you never said
“i’m sorry” for the letters
or love unanswered so now
it’s hard for me

to heal and mark this
birth day i would rather
leave behind except without
it i would not be

in  a quandary.

© Susan Macaulay 2013 – 2015. I invite you to share the links widely, but please do not reprint or reblog or copy and paste my poems into other social media without my permission. Thank you.

https://myalzheimersstory.com/2015/01/14/the-days-my-daddy-died/

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Death & Dying, Family, Life & Living, Memories

the days my daddy died

My father, his dog Kimmy, and me age two in 1958

My father was a handsome, intelligent, charming and troubled man.

He grew up in a well-to-do family with many privileges, but his childhood was less than idyllic. He suffered from allergies and painful eczema; sometimes rice was the only thing he could eat for weeks. His relationship with his own father, a decorated war veteran who later became a vice president of Bell Canada, was strained. He called him “the old man.”

At 16, he ran away from home. His whereabouts were unknown for a year until a family friend ran into him by chance in a cinema in California where he was working as an usher. Who knows how he got there, thousands of miles from his home in Quebec. His mother had been sick with worry; he had never called or written to say where or how he was.

He met and married Mom when they were in their early twenties. They lived in Vancouver, across the country from their families. My brother and I were born there. By all accounts Dad and Mom were happy on the west coast. But even those early days were not without issues; he began dabbling in the stock market, and tumbled deeply in debt. The old man bailed him out.

Then, just before Grandpa died in the late 1960s, Dad fell out with his two elder sisters over Grandpa’s estate. He wanted his share before Grandpa died. When they refused him, he didn’t speak to either for nearly 40 years.

In the meantime, we had moved back to Eastern Canada. I remember many good times with Dad, particularly in winter. He built an ice slide down the hill next to the house we lived in at the top of Clough Street in Lennoxville. The mini “luge,” which we slid down on our bottoms, was a big hit with the neighbourhood kids.

When we moved to a place in the country, he hollowed out huge piles of snow he shovelled himself to create igloos big enough for his six-foot frame to stand tall and for us to play in. He got up before dawn to drive us to far-flung events when we skied competitively; I can still hear him cheering as I crossed the finish line. He built stalls in the barn so I could keep Pony Club ponies over the winter even though he was allergic to horses. He was the master of ceremonies on Christmas mornings, sitting closest to the tree and distributing presents one by one, waiting as we opened them in turn.

These are happy memories. Others are painful.

One January night when I was 13 the two of us trudged up to the barn to mend a broken rail. Our breath blended and froze in clouds as I held the flashlight and he plunged one nail after another into a previously virgin two by four. In the midst of it, his anger at my mother boiled over and scalded me.

“All women are good for is growing a pair of tits and going out and getting a man,” he accused. After he went back to the house to resume the argument that had prompted the soul-destroying statement, I sat alone in the frigid barn and cried.

He drank gin and water in tumbler-sized glasses, and lost several fortunes in the stock market, which would have been fine if he’d had several fortunes to lose. I will never forget the day Mom walked into the kitchen crumpled and defeated by his addiction to speculating in gold stocks.

“The bank is going to take our home,” she choked out between sobs. He had used our home as collateral to buy stocks on margin. When the margin was called, he didn’t have the funds to cover it. Mom willed herself out of shock and managed to save the place by remortgaging it at 17 per cent.  I still wonder why she didn’t leave him then.

Several years later there was a court case around the questionable use of one of his client’s funds. Dad attempted suicide. While he didn’t manage to kill himself, part of him died anyway. Six months later, when I was “home” for Christmas, I sat beside him on his and Mom’s bed. Ferocious tears ran down his cheeks as he thrust the tender side of his forearms toward me–failed suicide scars laddered up from his wrists to his inner elbows.

“Look what your bitch mother did to me!” His words slammed against my chest. His rage frightened me.  Another little death. In 1990, I loaned him money. In 1991, when he and Mom finally divorced, he wanted more. After I said no, he didn’t speak to me for 15 years. He moved to Ontario, and lived alone in an apartment. His mental health declined, and he continued to play the stock market. When he began hoarding and neglecting his own physical health and hygiene to the point where he collapsed and was found by the neighbours, he was moved into a long-term care facility.

Across the years of deadly silence I sent birthday cards, Christmas cards, Father’s Day cards and letters. He never responded. When I was in Canada at Christmas in 2006, he called. He had become more frail; he wanted to speak to me.

“I’m a millionaire Sue,” he said. The stock market had finally repaid its debt, but not in kind.

“That’s nice Dad,” I said, feeling sad.

“I love you,” he said.

“You do? What about all the cards and letters I sent Dad? The ones you never answered?” I hadn’t given up hope of understanding.

“That doesn’t mean I stopped loving you,” he replied. I didn’t know what to say to that so I said nothing. My heart beat hard, and there was a lump in my throat.

“How is your life Dad?” I asked.

“God-awful,” he said. “Just god-awful.”

“I’m sorry Dad,” I said, meaning it.

The following Christmas I called him at the nursing home. There was no answer. I called back and spoke to the facility director. He was fine she said, just not in his room. I emailed her a link to AmazingWomenRock and attached a picture of myself. She emailed back to say they had shown Dad the website and pinned my picture in his room. He was happy to have the photograph, she said. He was proud of me, she said.

A couple of weeks later he fell gravely ill. He died on January 14, 2008. I hadn’t seen him for close to 20 years. Besides good and bad memories, Dad left me money. Without it, I wouldn’t have been able stop working, leave my life in Dubai and return to Canada to care for my mother. I wouldn’t have been able to hold her hand on this final part of her life journey; I wouldn’t have been there when she died. Our relationship wouldn’t have healed as it did, and I wouldn’t have experienced unconditional love. That’s quite a legacy.

In a strange twist of fate, even when my daddy really died, he didn’t. He lived on in a better way.

https://myalzheimersstory.com/2015/10/03/there-are-some-things-i-would-rather-forget-but-cannot/

https://myalzheimersstory.com/2015/11/05/all-souls-and-the-grandfather-i-never-knew/

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