Advocacy, Inspiration, Life & Living, Love

imagine how much suffering could be spared!

My friend Lorrie B. is an amazing writer, editor, translator and primary care partner to her parents, both of whom live with dementia. Lorrie is also an insightful blogger who documents her care partnering experiences here: Unforgettable.live. Like me, Lorrie is also insatiably curious, and, since becoming her parents primary care partner, has done extensive… Continue reading imagine how much suffering could be spared!

Advocacy, Antipsychotic drugs, Toward better care, You said it!

we need a paradigm shift

Retired medical writer turned care partner and blogger Lorrie Beauchamp was clearly impacted by Dr. Allen Power’s excellent post Living Well with Dementia: What it Means and What it Doesn’t Mean on Dr. Bill Thomas’s blog Changing Aging. She commented:  “As a retired medical writer and care partner for my parents (both with dementia/Alzheimer’s), I… Continue reading we need a paradigm shift

Activities, Advocacy, Inspiration, Toward better care, Videos

how many more steps could you take if you couldn’t take any more?

This post is dedicated to the late Dr. Richard Taylor, advocate Kate Swaffer, and care warrior Leah Bisiani. ~~~~~~~~~~~~~~~ “I think I could take a few steps,” Mom said, “even if there’s not too many.” It was her birthday. September 27, 2015. She’d been “behind bars” for almost three years, during which she had been inappropriately… Continue reading how many more steps could you take if you couldn’t take any more?

Advocacy, Toward better care, Videos

stand up for better care

During the last two years of her life, after she was made to sit in a wheelchair (despite the fact that she was still able to walk), I didn’t know if my mom had been given the opportunity to stand up and walk on the days I wasn’t able to go to “ElderJail” to help… Continue reading stand up for better care

Challenges & Solutions, Toward better care, Videos

how my mom’s affection got mislabelled “aggression”

My mom had an unflaggingly positive attitude, as you will hear in the video at the end of this post. It features an audio clip I recorded on Mom’s 87th birthday in 2015; the last one we would have together. When I suggested to Mom that she needed a new sweater because the one she… Continue reading how my mom’s affection got mislabelled “aggression”

Advocacy, Toward better care

loud sounds and dementia mostly don’t mix

“I would not want my mother sitting in a room with loud music and TVs blaring,” my writer friend Lorrie B. said in a zoom conversation on what would have been my mother’s 89th birthday. I didn’t want that either. But that’s how I found my mom almost every afternoon for the last eighteen months… Continue reading loud sounds and dementia mostly don’t mix