Advocacy, Antipsychotic drugs, Toward better care

juiced and joyful over jamda


It’s not every day that a non-academic, non-researcher, “nobody” without a whole bunch of letters after her name gets an article published in a professional journal. When it happens to you, well, it’s something to celebrate. At least it is when that you happens to be ME! And especially when the subject matter impacts millions of people who live with dementia around the world.

I’m delighted that the Journal of the American Medical Directors Association (JAMDA) published my editorial Efforts to Reduce Antipsychotic Use in Dementia Care are Starting to Bear Fruit, but a Lot of Work Remains to be Done in its March 2017 issue, not just because it again vindicates and validates everything I have said about my mom being inappropriately sedated with antipsychotic drugs for four years, but because it’s an indication that more members of the medical profession are beginning the see the light.

The link has been shared on twitter, Facebook and LinkedIn, generating interest and views around the world including in Australia, Canada, Ireland, United Kingdom, United States, and Spain. Yippppeee!

According to Altmetric, the article has a high attention score and is in the top 25% of all research outputs scored by the online tool. More yipppeees! A little street cred goes a long way when you’re a one-woman band marching to a different drummer as the systemic symphony plays a BigPharma tune.

The article may be viewed and downloaded at this link for free until April 15, after which it will be pay per view or via subscription to JAMDA. I invite you to take a look, and thank you for your ongoing support of my work and of

More information on antipsychotics here.

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Image copyright: maxborovkov / 123RF Stock Photo

19 thoughts on “juiced and joyful over jamda”

  1. So fantastic to be published in an academic journal, well done. It is pleasing to see that they are actually reading what goes on in the ‘real world’ rather than just the theory.

    Well done Susan


    1. Yes thanks and I’m chuffed. I think there’s a new (and welcome!) trend that recognizes that “regular” people have a lot of wisdom to contribute to our collective knowledge base moving forward. I think experiential learning is at least as important, albeit perhaps in a different way, as “book learning” is.

      Also, thinking of you at this time in your journey.


  2. Fantastic Susan! Well Done, if ever there was someone you would want fighting your corner it would be you : ) I’m sure your Mum is smiling broadly.


    1. Thanks Dahhhhling ❤ Yes, tenacity would appear to be one of my strong suits 😛 And yes, I think Mom is cheering me on, and likely also giving me a helping hand from wherever she is 🙂


  3. Way to go Susan,
    You deserve a standing ovation for your persistence and perseverance on a subject that most people just want to sweep under the rug! I applaud you for all that you have done – and all that you continue to do – for those who cannot advocate for themselves. Thank you for bringing such a strong voice to those that are left speechless.


  4. Dear Susan,
    Congrdulations! Thanks from all of us who are close to loved ones with dementia. Your hard work, your love and perseverance prouves you right.


    1. Merci Francine. Je continue de travailler fort au nom de ma mère et ta mère et toutes les autres personnes agées atteintes de demence. And of course I’m working for us too, because we will probably be there one day as well.


  5. Well done Susan! Your dedication is inspiring, and regarding marching to a different tune… the World needs composers such as you!


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