care partner struggles alone without support of loved one’s adult children
Some of the stories I hear from care partners break my heart. Many find themselves…
Browsing: Advocacy
dementia care partner mom investigated for having daughter help with care
Catherine Bixenman-salesi, who is a member of the online dementia support group USAgainstAlzheimers, is the primary…
10 practical actions that foster real person- and relationship-centered care
A lot of lip service is given to person-centered care, and often not a lot…
a story about being with the people you love, whatever the state of their brains
January 25, 2019: I struggle between my twin needs for solitude and connection. Today, I…
i tell my mom’s story to help improve dementia care worldwide
I strongly believe that people who live with dementia and their care partners need to…
are we way off target?
Harry Urban Lives with dementia. He started the Facebook dementia support group called Forget Me…
PR: should alzheimer’s advocates be doing it for #BIGpharma?
“It enrages, sickens and saddens me when I see Alzheimer’s Disease International promoting Eli Lilly…
how many are haunted?
When you tell people that care homes/nursing homes/long-term care facilities ban family members or threaten…
bullied and banned: rachel’s story
Rachel* sent me the first part of her story at the end of July 2018.…
somebody stole my mom
Janet Ng was the primary care partner to her mom, Shirley Ann Snow, who died…