dead to the world: what being sedated with seroquel did to my mom

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One of the main reasons the quetiapine (Seroquel) is “black boxed” in the United States and Canada for elderly people living with dementia is that it increases their risk of mortality. Some people who say “So what? They have dementia, they’re better off dead.” I don’t particularly agree with with that view, but I understand the rationale, and why some people would make the argument.

But the higher mortality rate is not why I’m opposed to the inappropriate used of antipsychotics to “treat” people living with dementia. I’m opposed to their inappropriate use because of the life-sucking effect they had on my mother while she was still alive. She was given both quetiapine (Seroquel), and risperidone (Risperdal) over a period of four years in doses that significantly affected her well being and her ability to enjoy life – and not in a good way! Never mind the increased risk of death, what about the increased of being “dead to the world” while you’re still alive?

I wonder if the doctors who prescribe these drugs fully understand the impact they may have on someone such as my mom? Reading about a side-effect on a warning leaflet, and seeing the reality are two different things. The three-minute clip below shows the difference between my mom being awake and alert, and being in a deep sedated sleep. It was filmed throughout a single day in the autumn of 2013.

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2 Comments

  1. If you love your parent, you are careful not to give Seroquel. I took care of my mom until the end and I too became very nervous with what Seroquel can do. However, as a geriatric care manager, I’ve had clients who took it and had no problems. Go figure!

    • Susan Macaulay on

      Well, I loved my mom and fought tooth and nail to get her off it, but I was not in legal control of her care, and so I failed. I think these drugs are often given out of ignorance. Many people who love their parent, spouse or whatever, feel they are doing the best thing by giving them such meds. Many people are convinced by doctors, nurses and care workers that antipsychotics are a must, families are threatened with having their family members evicted from care if they are taken off the drugs etc. And yes, some people may tolerate them, even benefit from them. That said the recommendation from geriatricians worldwide is the lowest dose possible for the shortest amount of time as I’m sure you know 🙂

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