Being a dementia care partner has its ups and downs, and often carers seem to have a harder time of it than even those with dementia they suffer to love.
On the other hand, many of us find healing, love, compassion and even joy in our role as care partners. I created this tongue-in-cheek A to Z poem to mark World Alzheimer’s Day 2017, and to celebrate, encourage and connect with care partners everywhere.
I hope you enjoy it.
the alzheimer’s care partners’ A to Z
A is for Alzheimer’s, the disease we all hate
B is for bravery in the lives we create
C is for courage, compassion and care
D is for denial when life seems unfair
E is for energy to live day by day
F is for friends, and family and faith
G is for going with whatever the flow
H is for hope, and helping flowers to grow
I is for imagining your care partner’s shoes
J is for joy and not crying the blues
K is for kindness, kibitzing and kids
L is for love, and not flipping our lids
M is for music, and feeling half mad
N is for never letting things get too bad
O is for oxygen – put it on yourself first!
P is for patience that stops stuff getting worse
Q is for quiet we get when we pray
R is for respite and relearning to play
S is for sanity and preserving your own
T is the time before loved ones have flown
U is for understanding it’s not about us
V is for validation and how it’s a plus
W is for warriors, and finding your way
X is for Xtra, and vision X-ray
Y is for you and all that you do
Z is for zonked and needing a brew!
© Susan Macaulay 2016. I invite you to share the links widely, but please do not reprint or reblog or copy and paste my poems into other social media without my permission. Thank you.