leslie jones 5 top care lessons & 5 more of my own

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lessons learned concept on black blackboard with coffee cupt and paper plane

“I’m so sorry for your loss, our loss. I have followed you and your mom’s story for a long time. My mom just died in December 2015. She lived with me, and I took care of her for the past ten years,” wrote Leslie Jones on the MyAlzheimersStory.com Facebook post after I posted something about Mom’s death.

Ten years is a long time to be a care partner to someone who lives with dementia. I saluted and thanked Jones for all she had done for her mother and I asked her if she would like to share her top five “lessons learned.”

“There were so many,” she wrote, and then she listed these top five:

  1. Patience is paramount
  2. Tomorrow will be better
  3. Laugh every day
  4. She gets frustrated too
  5. Nails don’t trim themselves

Here are five of my own (besides these):

  1. There’s no point hating a disease
  2. “Broken” minds do not define who people are
  3. Holding hands is heaven
  4. Music is better than medication
  5. Somewhere over the rainbow is here and now

What are yours? Feel free to share in the comments below.

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4 Comments

  1. Lorrie Beauchamp on

    OK, I’ll take a stab at this, even though I’m only in year two….but I’m caring for two, so maybe that counts!

    1. Learn how to control the undercurrent of anxiety; meditation and yoga does this for me.
    2. When you feel overwhelmed, go into an empty room and take several deep breaths.
    3. Look into their eyes when you have a conversation; watch their body language and energy and learn from it, because it is far more telling than what they tell you.
    4. Take a moment at the end of each day to be grateful for every little scrap of love you shared.
    5. Don’t be too proud to ask for help or time off – a little respite goes a long, long way to restoring your patience and perseverance.

  2. 1. Start the day with hope and a positive frame of mind.
    2. Be flexible.
    3. Keep the serenity prayer close.
    4. Note a few good things each night, even small successes such as. s/he is here now, s/he like … , s/he said it was a good day
    5. Find somerhing that makes both of you laugh like a repeating parrot or laughing baby or happy dance.

    Sent from my Samsung Galaxy smartphone.

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